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About Bleeding Disorders Awareness Month
Ends: Mar 31, 2022
DESCRIPTION:
Bleeding Disorders Awareness Month, formerly Hemophilia Awareness Month, focuses on the genetic blood disease that prevents blood from clotting normally. References to excessive and unexplained bleeding have been made since antiquity. In the Talmud, a collection of Jewish Rabbinical writings from the 2nd century of the Common Era, notes that male babies did not have to be circumcised if two brothers had already died from the procedure.
Hemophilia has often been called the " Royal Disease" .
Queen Victoria of England (1837-1901) was a carrier of the hemophilia gene and subsequently passed the disease on to several royal families. Victoria's eighth child Leopold had hemophilia and suffered from frequent hemorrhages, which were reported in the British Medical Journal in 1868.
By the 1990s, the safety and efficacy of factor concentrates improved.
In 1992, the first recombinant factor VIII product was approved by the Food and Drug Administration (FDA).
In 1997, the first factor IX product was granted FDA approval. Additional synthetic drugs such as desmopressin acetate (DDAVP) were also introduced to treat mild-to-moderate Hemophilia A and Von Willebrand disease.
By the mid 1990s prophylactic (a preventative treatment regimen) therapy in children with hemophilia became more common. Since the advent of prophylaxis, children could look forward to a life of less pain, without the orthopedic damage associated with chronic bleeding.
As a result, most children born with hemophilia in the U.S. today can look forward to long, healthy and active lives.
This event first occurred in 1986.
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Queen Victoria's Family Tree
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