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About Infantile Spasms Awareness Week
Safety & Security
Ends: Dec 07, 2025
DESCRIPTION:
The collective goal of Infantile Spasms Week (ISAW) is to increase awareness and understanding of infantile spasms through:
Developing and distributing educational materials to providers, caregivers, and the public
Announcing new and valuable research and support initiatives
Recognizing exemplary contributions to care
Inviting families living with IS to be part of a larger community—many stories with one voice
In 2015, CNF partnered with the Tuberous Sclerosis Alliance (TS Alliance) to lead a multi-year IS awareness and education initiative. IS efforts are showcased during Infantile Spasms Awareness Week (ISAW), held annually during the first week in December.
ISAW is held December 1-7 each year. #ISAW2017 #onevoice
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