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About Rare Disease Disorder Day
Ends: Feb 28, 2023
DESCRIPTION:
Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets the general public, patients and patient representatives, politicians, public authorities, policy-makers, industry representatives, researchers, health professionals, and anyone with a genuine interest in rare diseases.
Rare Disease Day originated with EURORDIS and its Council of National Alliances in 2008. Since, thousands of events have taken place worldwide, reaching hundreds of thousands of people and media coverage.
The political momentum resulting from the day has also served advocacy purposes. It has notably contributed to developing national plans and policies for rare diseases in several countries.
Though this began as a European event, it has progressively become a world event observed on the last day of February.
VIDEOS
SUPPORTING DOCUMENTS
Rare disease Day Information Pack
ADDITIONAL IMAGES
Rare Disease Day Poster
Rare Disease Day Logo
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