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Events in April 2025
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About Rare Disease Disorder Day
Ends: Feb 28, 2023
DESCRIPTION:
Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets the general public, patients and patient representatives, politicians, public authorities, policy-makers, industry representatives, researchers, health professionals, and anyone with a genuine interest in rare diseases.
Rare Disease Day originated with EURORDIS and its Council of National Alliances in 2008. Since, thousands of events have taken place worldwide, reaching hundreds of thousands of people and media coverage.
The political momentum resulting from the day has also served advocacy purposes. It has notably contributed to developing national plans and policies for rare diseases in several countries.
Though this began as a European event, it has progressively become a world event observed on the last day of February.
VIDEOS
SUPPORTING DOCUMENTS
Rare disease Day Information Pack
ADDITIONAL IMAGES
Rare Disease Day Poster
Rare Disease Day Logo
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Jubilee LLC reserves the right to accept or reject inclusion of events in this calendar. The appearance of an event in LEEP Calendar does not imply endorsement of the event, nor the organization championing the event by Jubilee LLC, its stakeholders, customers or subsidiaries. All dates, contact information, URLs, addresses, and information relating to any event, promotion or holiday are subject to change without notice and should be treated as estimated. Jubilee LLC, our stakeholders, customers and subsidiaries cannot warrant accuracy. Users of this application are solely responsible for verifying actual event date with organizers and additional sources prior to committing resources, financial, human or otherwise.
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