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About Cystic Fibrosis Month
United States
Ends: May 31, 2021
DESCRIPTION:
Each May the Cystic Fibrosis Foundation Sponsors Cystic Fibrosis Awareness Month to highlight the growing need for awareness about cystic fibrosis (CF). During this time volunteers and people with CF and their families unite to help shine a spotlight on what CF is and the progress being made toward a cure.
1) 30,000 children and adults have CF in the United States.
2) More than 10 million Americans are symptomless carriers of the defective CF gene.
3) About 1,000 new cases of cystic fibrosis are diagnosed each year.
Activities include: Walk in Great Strides, an annual fundraising walk occurring in over 600 locations throughout the United States.
Australia also observes May as 65 Roses Month with 65 Roses Day at the end of May to bring awareness to this disease as well.
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
Clogs the lungs and leads to life-threatening lung infections; and
Obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
The symbol of Cystic Fibrosis is the 65 Roses Campaign.
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