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About Microtia Awareness Day
United States
Ends: Nov 09, 2024
DESCRIPTION:
Microtia Awareness Day, observed annually on November 9th, is a significant day initiated by the Ear Community Organization to raise awareness about microtia. With this congenital deformity, the external ear is underdeveloped.
The Ear Community Organization, a nonprofit that supports individuals with microtia and atresia, their families, and healthcare providers, established Microtia Awareness Day in 2016. The organization's founder, Melissa Tumblin, who has a daughter with microtia and atresia, spearheaded this initiative. The goal was to provide a platform for education, support, and advocacy, promoting greater understanding and acceptance of this condition.
Microtia, which means "small ear," occurs in various forms, ranging from a slightly small ear to the complete absence of the ear. It can affect hearing and lead to challenges in speech development. The day emphasizes the importance of early diagnosis and interventions, including hearing aids, reconstructive surgery, and other treatment options to improve the quality of life for those affected.
On Microtia Awareness Day, families, healthcare professionals, and advocacy groups participate in events and social media campaigns to spread information about microtia. Personal stories are shared to highlight the experiences of individuals with microtia, fostering a sense of community and mutual support.
The observance also seeks to promote research into the causes and treatments of microtia and atresia. Despite being a relatively common congenital condition, occurring in about 1 in every 9,000 births, microtia is not widely known. Increasing awareness can lead to better resources and support for research and development in this field.
In addition to education and advocacy, Microtia Awareness Day is a call to action for better access to healthcare and support services. It highlights the need for insurance coverage for hearing aids, surgeries, and other treatments related to microtia and atresia.
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