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Welcome to Spring or Autumn. This is a transitional month with something for everyone. Internationally, it is Women's History Month, focusing on the achievements, needs, and challenges that women ...
The world steps into the second month of 2025 with hope and trepidation. The United States has a new administration. Canada is finding its way to a new administration. Germany and several other European nations...
There are several unique focuses for 2025. I covered the first 12 in Part One. The following are the rest I have discovered for this year. As with all issues of LEEP Ink, the following descriptions are a...
Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets the general public, patients and patient representatives, politicians, public authorities, policy-makers, industry representatives, researchers, health professionals, and anyone with a genuine interest in rare diseases.
Rare Disease Day originated with EURORDIS and its Council of National Alliances in 2008. Since, thousands of events have taken place worldwide, reaching hundreds of thousands of people and media coverage.
The political momentum resulting from the day has also served advocacy purposes. It has notably contributed to developing national plans and policies for rare diseases in several countries.
Though this began as a European event, it has progressively become a world event observed on the last day of February.
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