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About Rare Disease Disorder Day

Worldwide
EVENT NAME:
Rare Disease Disorder Day, World
EVENT CATEGORIES:
Health
Dates Active:
Begins: Feb 29, 2024
Ends: Feb 29, 2024
EVENT ADDRESS:
RESERVE TICKETS:

DESCRIPTION:

Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

The campaign targets the general public, patients and patient representatives, politicians, public authorities, policy-makers, industry representatives, researchers, health professionals, and anyone with a genuine interest in rare diseases.

Rare Disease Day originated with EURORDIS and its Council of National Alliances in 2008. Since, thousands of events have taken place worldwide, reaching hundreds of thousands of people and media coverage.

The political momentum resulting from the day has also served advocacy purposes. It has notably contributed to developing national plans and policies for rare diseases in several countries.

Though this began as a European event, it has progressively become a world event observed on the last day of February.

VIDEOS

SUPPORTING DOCUMENTS

ADDITIONAL IMAGES

Rare Disease Day Poster

Rare Disease Day Logo

EVENT CHAMPION

Where would you like to go now?

LAST UPDATED:

Dec 17, 2023

EVENT MANAGER:

LEEP
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