AD
LEEP INK FEATURES
Nuanced November 2024
November is the start of the holiday season in many parts of the world. It is a time for family, football, food, shopping and decorating, particularly in the Christian and Jewish world, leading to Christmas and...
December's Gift
Events in December 2024. Well, we made it to December. December is the holiday season, particularly in Western nations, where Christianity and Judaism are the faiths most common in the nation's past. ...
August is Appropos
A toddler playing in the fountain at a park in Santa Fe, New Mexico—Photo LD Lewis. In August, we live through the Dog Days of Summer. It's hot and often humid, and those ...
About Cystinosis Awareness Day
Fundraising Event
Ends: May 07, 2022
DESCRIPTION:
Cystinosis Awareness Day first ran in 2018. This annual event seeks to raise awareness about the disease and raise funds to find a cure.
From the Cystinosis Research Network:
“Cystinosis is a rare genetic, metabolic, lysosomal storage disease caused by mutations in the CTNS gene on chromosome 17p13 which results in an abnormal accumulation of the amino acid cystine in various organs and tissues of the body such as the kidneys, eyes, muscles, pancreas and brain. The cystine accumulation causes widespread tissue and organ damage. Cystine accumulation can lead to kidney failure, muscle wasting, swallowing difficulty, diabetes, hypothyroidism, cerebral atrophy, photophobia, blindness, corneal ulceration, ventilatory impairment and more. Without treatment, children with cystinosis will usually develop end stage kidney failure or die prematurely. If cystinosis patients receive a kidney transplant, their new kidney will not be affected by the disease. However, without specific treatment, cystine accumulation can cause complications in other organs of the body.”
VIDEOS
Currently, this event does not have supporting videos.
SUPPORTING DOCUMENTS
Currently, this event does not have supporting documents.
ADDITIONAL IMAGES
Currently, this event does not have supporting images.
Where would you like to go now?
AD
/footer-logo.svg){kind=logo}
LEGAL: Excerpts and links may be used, provided that full and clear attribution is given to Jubilee LLC and LEEPCalendar.com, with appropriate and specific direction to the original content (Page URL). Additional documents, embedded videos and additional image rights retained by their creators and are provided to increase understanding of the event or topic.
Jubilee LLC reserves the right to accept or reject inclusion of events in this calendar. The appearance of an event in LEEP Calendar does not imply endorsement of the event, nor the organization championing the event by Jubilee LLC, its stakeholders, customers or subsidiaries. All dates, contact information, URLs, addresses, and information relating to any event, promotion or holiday are subject to change without notice and should be treated as estimated. Jubilee LLC, our stakeholders, customers and subsidiaries cannot warrant accuracy. Users of this application are solely responsible for verifying actual event date with organizers and additional sources prior to committing resources, financial, human or otherwise.
Jubilee LLC, 1712 Pioneer Avenue,Suite 2019 Cheyenne, WY 82001 +1 (484) 226 4777
Copyright © Jubilee LLC / LEEPCalendar.com 2024. All rights reserved.
/Icon awesome-facebook-square.svg)
/Icon awesome-instagram.svg)
/Icon awesome-twitter-square.svg)
/Icon awesome-linkedin.svg)
/Icon awesome-behance-square.svg)