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International Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis / Fibromyalgia Awareness Day occurs each year on the birthday of Florence Nightingale (May 12, 1820) since 1992. She was believed to have been afflicted with ME/CFS.
Both the International Day and Week are initiated by The CFIDS Association of America and observed throughout the world, but most notably in England, South Africa, the US, Canada and Australia. The purpose of the week and focus day are to draw attention to the illness, inform the public of their options should they be struggling with ME/CFS or suspect they have it, and raise funds toward finding a cure.
Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), is a complex and debilitating chronic illness. This is a middle age disease, striking mostly women, people in their 30s and 40s during the prime of life. However it can strike any sex and any age. Over 1 million people in the US and 10s of millions worldwide suffer.
Symptoms include:
Visual blurring, light sensitivity and eye pain
Difficulty maintaining upright posture
Dizziness, balance problems and fainting
Chills and night sweats
Trouble sleeping
Gastrointestinal disturbances
Allergies and sensitivities to foods, odors, chemicals, medications
Brain fog and cognitive impairment
Gynecological problems including PMS
Irritability, depression and mood swings
The severity of ME/CFS varies greatly. About 25 percent of people with ME/CFS are disabled by the illness. Most symptoms are invisible to others.
Common conditions that occur along with ME/CFS include:
Fibromyalgia
Orthostatic intolerance
Irritable bowel syndrome
Interstitial cystitis
Temporomandibular joint disorder
Chronic pelvic pain
Multiple chemical sensitivity
Studies show that fewer than 20 percent of ME/CFS patients in the United States have been properly diagnosed. Diagnosing ME/CFS is a challenging process because there is still not one diagnostic test or biomarker that is conclusive.
The cause is unknown and currently no cure exists for ME/CFS.
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